Saturday, February 1, 2014

Week 3, Bloggers Unite #EndoMarch 2014... Letter to my Representative.

So this week as part of the Bloggers Unite for Endometriosis we wrote our Representatives,  I decided to go ahead and write my Senators as well,  The more the merrier right!?! :) 

If you are interested in writing to your representative to help with the cause you can find out how to contact your representatives here: http://beta.congress.gov/members

I decided to put some flyers about the event in with my letter as well.  


I wrote to my Representative:

Congressman Mike McIntyre
2428 Rayburn House Office
Washington, D.C. 20515



Dear Representative McIntyre,

My name is Krystal Agic and I am a resident of Carolina Shores of Brunswick County, NC. I am writing you today to invite you to be part of a movement that will impact women’s health significantly.  This movement is The Million Woman March for Endometriosis and it will take place in Washington, D.C. on March 13, 2014. Women have long suffered in silence with this disease, including myself.  We hope for a change that will lead to better understanding, education and medical care.  On this day many will gather to create that change and let their voices be heard.  Due to a lack of awareness and knowledge in the medical profession many women suffer for up to ten years without diagnosis, left to wonder what is wrong with them and without answers.  Many of these women are misdiagnosed and therefore are inaccurately treated. In many cases by the time of a correct diagnosis irreversible damage has occurred and her health has been severely affected.  Over 176 million women currently suffer from endometriosis.  Statistics show that at this moment 1 in 10 of your female constituents are currently suffering. 

I am one of the many women who endure this terrible misunderstood disease.  I was diagnosed through surgery at the age of sixteen.  I have suffered with this disease for twenty years now.  Currently, there is no cure and many treatments prove to be ineffective.  Despite numerous surgeries and a confirmed diagnosis I am still untreated and at times made to feel that because I am woman, this is just something that should be expected. This is a result of a lack of knowledge.  This disease is highly misunderstood and that has to change.  No one should suffer through daily life without help or understanding.  This disease can be very debilitating and it is extremely painful.  I, as well as many other women want to be productive citizens in society who can function normally because we receive adequate medical attention.  We want to continue our educations, keep plans, work productively, etc. but with this disease there are times that these everyday tasks are not possible. 

I will be joining many women from across this nation in Washington, D.C. on March 13, 2014 for the Million Woman March for Endometriosis to help create the change that has lacked for far too long.  I march in hopes to raise awareness and for future women and girls so that they will not have to suffer in silence as so many have.  The goals of this march are to unite those with endometriosis and their supporters to take a stand against this disease that has been misunderstood for so long.  This march will also educate others by raising awareness and letting this disease and its effects be known.  We hope to encourage education and training in the medical community in order to promote early detection and improved treatment.  Finally, this march will create change.  We want a cure and to develop non-invasive diagnostic tests.  Currently surgery is required to diagnose endometriosis.  We want improve screenings and work with government to allocate funding for this disease.  

I hope you can join me in Washington, D.C. on March 13th as my representative and as individual who cares about women’s health.  I would be proud to march with you as you show your support and help millions of women around the world.  For more information please visit http://www.millionwomanmarch2014.org/

Thank you for your time and kind consideration.

Sincerely,

Krystal Agic
 
So off they go to spread awareness and inform others!



Monday, January 20, 2014

What ‪#‎endomarch‬ means to me personally..

Today I would like to let you know why this movement (Million Woman March for Endometriosis - MWMFE) is so extremely important to me.  I have suffered from Endometriosis for quite sometime now. I began suffering from it as a young girl at the age of fifteen, and was diagnosed at seventeen.  I have been surviving this disease for 20 years.  Being diagnosed with an invisible illness is horrible, but being diagnosed with one that has no cure is simply devastating.  I have lived with a sense of hopelessness since that diagnosis. I felt that this was a disease that I would suffer from as long as I live.  I felt there was no hope because most people don't even know what it is or that it even exists, and unfortunately most doctors don't understand the disease or know how to treat it effectively. Learning of this march sent joy throughout my entire body!  I'm not sure that there are words to describe the flood of hope that rushed through me!  I am forever grateful to the team who put this magnificent movement in motion.  I know now that we are going to find a cure, and that when people hear of endometriosis, they will know what it is.  We will not suffer alone in the darkness anymore! We will end the silence and finally be understood.

Currently the only treatments for endometriosis are surgeries, hormonal treatments, and pain medications to help deal with the pain.  Hysterectomies are commonly recommended, but this is not a cure or fix in the majority of cases.  It requires a very skilled excision doctor to make a hysterectomy successful, and unfortunately there are very few of them.  You see if endometriosis has implanted anywhere in your body and it isn't completely excised, it will continue to grow and feed itself. Contrary to many beliefs endometriosis does not need your ovaries to produce estrogen for it to grow, because it produces it's own.

Being diagnosed at a young age was devastating, not only to myself, but to my family as well.  I had been seeing a doctor from the very beginning of my menstrual cycle, I went in every month in agonizing pain.  The doctors told me that periods are sometimes really painful and that I had a low tolerance for pain.  I was made to feel that I was exaggerating, when in fact I felt as if my insides were attacking my body.  They would send me home with Naporoxen and I would cry and lay in the fetal position for days.  Periods were long, never less that seven days and some up to fourteen.  Nothing helped, but a heating pad and lots of meds would sometime take the edge off.  I would pray to God for it to end, I was in extreme pain that physically made me sick, fevers, vomiting, fainting, etc.  I continued going in every single month and finally I requested to be sent to another OB/GYN  in a larger city in hopes they would have more knowledge or technology and possibly could help me figure out what was wrong with me.  I knew at sixteen that something was really wrong.  I saw a gynecologist in Charlotte, NC who after the first visit said she thought that I might have endometriosis. She explained what it was to my mother and me, which didn't explain much at the time.  She scheduled me for an emergency laproscopic surgery and I went in the following week and the diagnosis was confirmed.  I was diagnosed with Stage IV endometriosis, during this procedure they found that my fallopian tubes were completely sealed shut with endo and scar tissue.  I was told that I would never, even with medical assistance be able to conceive a child because there was significant damage to all my reproductive organs.  This news was devastating.  My bladder and intestines were significantly affected as well.  I did later conceive a child which was a huge surprise as you can imagine, she is my miracle baby (She's 12 now, so I guess she isn't a baby, but she is and will always be my baby). I am one of the lucky ones who were able to conceive despite the odds against my body. Throughout my journey with endo, I have had many surgeries, hormonal treatments (side effects made things worse in most cases), and thousands upon thousands of dollars in doctor bills and unsuccessful treatments.


I'm getting ready to celebrate my 35th birthday and I still suffer immensely, but now I know that there is hope, and that does make it a little more comforting.  Through this experience I have become a Precinct Manager for the state of North Carolina, and I'm honored that I can help make a difference, not only for myself, but for all the others who suffer. I also march for the women and young girls who will one day stand in the unfortunate shoes that I have stood, and for them it won't be so hopeless. 

This march means the world to me!  It means that someone cares, that someone took the time to say "These women and girls need our help" and for that I am eternally grateful.  It means that we may not have to suffer our entire lives.  It means we will not continue to be misunderstood and judged unjustly. It means HOPE!  I will stand united with women like me and we will make a difference, and for that, there simply aren't enough words to say THANK YOU! 

For more information on the march please go visit http://www.millionwomenmarch2014.org/

Million Woman March for Endometriosis, Bloggers Unite! Week 1...

Hi, I'm Krystal!  Endometriosis affects millions of women, and I'm one of them. 

 I am really excited about the Million Woman March for Endometriosis (MWMFE) and will be sharing information regarding this wonderful upcoming event and information about endometriosis.  It's time to Empower, Educate, and Effect! 

What:  Million Woman March for Endometriosis is an event that is scheduled to occur in dozens of capitals around the world to help raise awareness about endometriosis.

When: Thursday, March 13, 2014

Who: Dr.









Where:  Demonstrations will take place at the same time throughout the world in different locations.  I will be attending the event in the United States, which will take place in Washington, DC.
Other international demonstrations will occur worldwide in dozens of capitals, including Amsterdam, Belfast, Berlin, Brasilia, Buenos Aires, Copenhagen, Dublin, Helsinki, Kingston, Lisbon, London, Madrid, Oslo, Reykjavik, Rome, Stockholm, and Valleta.  Visit the website http://www.millionwomenmarch2014.org for more location information.

Why:  Endometriosis is a disease that effects 1 in 10 women and girls. Most receive inadequate care and misdiagnosis's for many years due to a lack of education and awareness throughout the medical community, as well as in society.  Endometriosis effects and in many cases destroys women's reproductive organs, but it can also effect many other organs causing irreversible damage to the lungs, liver, heart, eyes, kidneys, brain, bladder, bowel, diaphragm, nerves, and muscles.  We must create awareness so those who suffer from this disease no longer have to suffer in silence.  We also need to educate our health professionals so that women who suffer can find adequate health care.  I am in hopes this will lead to more research and spark the finding of a cure!

How:  You can REGISTER to attend the March! Contact a Precinct Manager or Country Captain to see what is happening in your area.  Please join us in spreading Endometriosis Awareness!

I am a Precinct Manager for North Carolina, feel free to contact me with any questions you may have.  I would be happy to help connect you or answer any questions you may have.  Email me at endomarch.northcarolina03@gmail.com

I hope to see you in Washington, DC on Thursday, March 13, 2014!

Please visit http://www.millionwomenmarch2014.org/ for more information





Sunday, December 30, 2012

More Elfin' around ;)

I'm late in posting this, oh well gonna do it anyway! 
Here are all the other crazy things our silly elf did before he went back to the north pole!
Day 9 
Baby Elf
 Day 10...
Snack attack!
  
Day 11
  
 Day 12
 Day 13
 
Day14
Chimney Inspection
 Day 15
Taking over presents! 
Day 15
  
Day 16
The North Throne
  
Day 17
Fishin'
Day 18
The best way to spread Christmas cheer is to rock out loud for all to hear!
 
 Day 19
Candy, Candy, Candy..
Day 20
Hot Air Balloon Ride...
 Day 21
Accident on the Frosty Freezeway...
 
Day 22
 
Day 23
On the final day he was on the mantel waving goodbye! :) 











 














Saturday, December 8, 2012

Elfin' around!

So once again it's been a while since I've posted here. I'm gonna do better, I promise.  
I have been posting, it's just been on my other blog, my sweet one...
If you haven't checked it out, then you should!  

Anyway onto the point! 
This year a custom elf arrived on our doorstep... 
It twas the evening of December 1st.

I wish I had my camera nearby or that I had recorded it...
It was such a mix of emotions that I had never seen anyone display before.

The doorbell rings, we ask Chrissie to see who is here.
 She comes back and says "I don't know what is going on, but there is no one here."
It rings again...
Once again she goes to the door, this time with two of her cousins that were spending the night..
She doesn't see him at first, but Emma (one of the cousins) does...
Once Chrissie realized there was an elf here, she freaked out!
She tried to shut the door quickly expressing how she did not know why he was here, 
but he needed to go back to where he came from.
"I do NOT want an elf!!!"
She didn't like the idea at all, as a matter of fact all three of the girls were creeped out by his arrival.

The looks on all there faces was something I don't believe I've ever seen.
They were excited, scared to death, curious, giddy, sad, and disappointed 
all at the same time.
Chrissie had misbehaved the day before, so his arrival was a BIG deal to her, 
and she wasn't so sure she liked the idea of an elf watching over her to report back to Santa.

By the end of the evening they had warmed up to the idea, and were starting to enjoy his presence here
on the shelf.
Excitement and wonder filled the room as they began whispering about him!
Soon, you could see the magic of Christmas in their eyes!
She named him "Jake the Elf"
(after her Daddy <3)

So here are some photos of what he has been up to thus far...
I must say he is quite mischievous and creative at times!

The first morning with the elf they woke up to find that Holiday Barbie and "Jake the Elf"
had been dashing around in a one horse open sleigh..
The next day he toilet papered our tree...
She thought this was funny and that perhaps he was
practicing flying going around the tree!
 Day 3 
He made us the cutest sugar cookies! 
She loved this one! 
We found out later that day that it was National Cookie Day!
WIN!
Day 4
Someone's being naughty again...
I woke up to her telling her Daddy quite firmly that...
"Ohhhhh!  Mom is gonna be MAD!"

Day 5
Zip lining to put a star on our decorative trees! 

Day 6
He's cleaning up his act!
She thought this was so funny! 
Day 7
Deck the Halls!
He's found himself a new dream home.
She was thrilled to find him in her dollhouse, and that he had decorated!
 This is it so far, but needless to say we are all enjoying waking up 
to find what clever or mischievous thing he has gotten himself into!
We love our elf! ;) 
 Updates will follow, so that I can keep you posted on the adventures of our elf, Jake.
Subscribe to stay updated! 
 

Friday, September 21, 2012

My Cake Blog!

Just wanted to let everyone know that I also have another blog that I have been working on!  It displays my cakes and will feature tutorials from time to time!  Please check it out and I would love for you to follow and share!  It's cakethatblog.blogspot.com
Thank you and I hope to see you there!  It'll be sweet!

With sprinkles and love,
Krystal

Friday, July 20, 2012

The love/hate relationship

Oh Pinterest, How I love you and all of your wonderful pins! I browse through all of these brilliant, clever, sometimes oh so simple ideas and I become empowered!
I can create anything!
I frequently have the "why didn't I think of that?" moment, oh well, now I know.
I am going to do so many things!!! I absolutely love it!
My house is going to look like the museum of crafty things!
That is my idea, don't steal it. No, you can't make the museum of crafty things!
Because that is my invention/pin to come. Don't be jealous either, that's not nice.
Okay fine, you can be a little jealous...
You can't help it.
J/K, But really...
don't hate, just relate!

On to my love hate relationship,

So, I have a plan to start the day
I'm gonna get up and start this beautiful productive day!
Have some coffee, eat something...
then...
get to the plan....

I'm going to conquer the secret mountain of laundry waiting to be folded and put away,
Clean the house, top to bottom,
organize the junk drawer, (you have one too)
Clean all the glass, get those spots on the windows,
sweep the porch, trim the hedges,
cook something delicious for dinner...

And then it occurs, while sipping my coffee
I find myself clicking on the bookmarked tab..
Pinterest, what clever tips do you have for me today,
maybe some clever idea to help with my tasks...
Yea, there are those, I have them pinned under household..
Maybe, a delicious recipe for me for me to cook for dinner...
Then the next thing I know, I'm tie dying a T-shirt with a sharpie and alcohol!
It's fun, but so much for conquering the mountain of laundry!
Next, I'm laughing at hilarious quotes, admiring clothing,
and fantasizing about a beautiful land I want to visit, and planning a vacation.

Now a few hours have gone by... NO WAY! I'm not going to do all that junk now,
Forget "The Plan"
I have to get dinner started. Besides, I wasn't in the mood for cleaning anyway.
Oh well, sometimes it is a total time trap for me, but to be honest,
I love every minute of it!!!
You know it's kinda funny,
I was only gonna look at a few pins...
then a few turned into a whole world of awesomeness!
Next, I'm searching, browsing and oh my goodness,
Can you believe it?
Amazing!
Truly one of my favorite sites!

So where's the hate? I guess there is none,
I got nothing but love for ya!

So while you're there pinning, and we both know you are...
Follow my boards!

Happy Pinning,
Krystal